Website Tool for Reducing Burden in Dementia Care Partners with Dysphagia Challenges
WeCareToFeedDysphagia web tool
Caregiver Burden+16
+ Alzheimer Disease
+ Behavior
Supportive Care Study
Summary
Study start date: October 8, 2024
Actual date on which the first participant was enrolled.This clinical trial is exploring whether a new website tool, called WeCareToFeedDysphagia, can help reduce the feelings of stress and burden experienced by caregivers of people with Alzheimer's disease and related dementias who also have trouble swallowing, known as oropharyngeal dysphagia. The study is specifically looking at how the tool influences caregivers by measuring the strength of its effect on reducing their burden. The trial is important because it could lead to better support for caregivers, making their challenging roles more manageable, and it aims to determine if these findings could be applied in a larger study with more participants. In this study, caregivers are divided into two groups. One group uses the WeCareToFeedDysphagia tool, receiving three text reminders over a three-week period to engage with the tool. Both groups have access to contact information for a speech language pathologist for additional support. Participants will complete online surveys three times: when they join the study, one month after the patient leaves the hospital, and three months later. This will help researchers determine if the tool effectively eases caregivers' burdens and whether the study method can be applied on a larger scale.
Protocol
This section provides details of the study plan, including how the study is designed and what the study is measuring.80 patients to be enrolled
Total number of participants that the clinical trial aims to recruit.Supportive Care Study
Eligibility
Researchers look for people who fit a certain description, called eligibility criteria: person's general health condition or prior treatments.Any sex
Biological sex of participants that are eligible to enroll.Over 18 Years
Range of ages for which participants are eligible to join.Healthy volunteers not allowed
If individuals who are healthy and do not have the condition being studied can participate.Conditions
Pathology
Criteria
Study Plan
Find out more about all the medication administered in this study, their detailed description and what they involve.One single intervention group is designated in this study
This study does not include a placebo group
Treatment Groups
Group I
ExperimentalStudy Objectives
Primary Objectives
Secondary Objectives
Study Centers
These are the hospitals, clinics, or research facilities where the trial is being conducted. You can find the location closest to you and its status.This study has 1 location
Feinstein Institutes for Medical Research
Manhasset, United StatesOpen Feinstein Institutes for Medical Research in Google Maps