Completed

Obstructive Hypertrophic Cardiomyopathy (HCM) in Children: Natural History and Results of Dual Chamber (DDD) Pacemaker Therapy

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What is being tested

Paragon Pacemaker

Device
Who is being recruted

Aortic Valve Disease+5

+ Aortic Stenosis, Subvalvular

+ Aortic Valve Stenosis

From 5 to 20 Years
See all eligibility criteria
How is the trial designed

Treatment Study

Phase 1
Interventional
Study Start: October 1993
See protocol details

Summary

Principal SponsorNational Heart, Lung, and Blood Institute (NHLBI)
Last updated: July 2, 2017
Sourced from a government-validated database.Claim as a partner

Study start date: October 6, 1993

Actual date on which the first participant was enrolled.

Several studies have shown that dual chamber (DDD) pacemaker therapy relieves LV outflow obstruction and improves symptoms in most adult patients with obstructive hypertrophic cardiomyopathy (HCM). It is however, uncertain whether DDD pacing will be efficacious in children with obstructive HCM, because of evolving cardiac morphology and increased LV hypertrophy and outflow obstruction associated with rapid body growth. We propose to monitor clinical progress, and cardiac morphologic and hemodynamic changes over several years following implantation of a DDD pacemaker in children who present with obstructive HCM between the ages of 5 to 15 years. Functional status, myocardial ischemia, arrhythmias, and LV outflow obstruction will be evaluated by exercise tests, echocardiography, thallium scintigraphy, Holter monitoring, electrophysiologic and cardiac catheterization studies. The results of pacemaker therapy will be compared with the findings in a cohort of young patients with obstructive HCM who elect not to be treated with DDD pacemaker.

NCT00001396
Principal SponsorNational Heart, Lung, and Blood Institute (NHLBI)
Last updated: July 2, 2017
Sourced from a government-validated database.Claim as a partner

Protocol

This section provides details of the study plan, including how the study is designed and what the study is measuring.
Design Details

100 patients to be enrolled

Total number of participants that the clinical trial aims to recruit.

Treatment Study

These studies test new ways to treat a disease, condition, or health issue. The goal is to see if a new drug, therapy, or approach works better or has fewer side effects than existing options.

Eligibility

Researchers look for people who fit a certain description, called eligibility criteria: person's general health condition or prior treatments.
Conditions
Criteria

Any sex

Biological sex of participants that are eligible to enroll.

From 5 to 20 Years

Range of ages for which participants are eligible to join.

Healthy volunteers not allowed

If individuals who are healthy and do not have the condition being studied can participate.

Conditions

Pathology

Aortic Valve DiseaseAortic Stenosis, SubvalvularAortic Valve StenosisCardiovascular DiseasesHeart DiseasesHeart Valve DiseasesCardiomyopathiesCardiomyopathy, Hypertrophic

Criteria

INCLUSION CRITERIA: DDD Pacemaker Therapy Children of either gender, aged 5 to 15 years. Presence of LV hypertrophy and LV outflow obstruction. EXCLUSION CRITERIA: DDD Pacemaker Therapy Other systemic disease that prevent evaluation by echocardiography or cardiac catheterization. Chronic atrial fibrillation. Positive pregnancy test. INCLUSION CRITERIA: Cohort Study Children of either gender, 5 to 20 years (children greater than 15 years will be included if there is access to reliable previous catheterization data). Presence of LV hypertrophy and LV obstruction. EXCLUSION CRITERIA: Cohort Study Other systemic disease that prevent evaluation by echocardiography or cardiac catheterization. Chronic atrial fibrillation. Positive pregnancy test.

Study Centers

These are the hospitals, clinics, or research facilities where the trial is being conducted. You can find the location closest to you and its status.

This study has 1 location

National Institutes of Health Clinical Center, 9000 Rockville Pike

Bethesda, United StatesOpen National Institutes of Health Clinical Center, 9000 Rockville Pike in Google Maps
CompletedOne Study Center