Emotional Needs of Caregivers and Patient/Spouse Couples During Hematopoietic Stem Cell Transplantation (HSCT)
Colección de datos
Enfermedades Urogenitales+34
+ Enfermedades de la Mama
+ Neoplasias de la Mama
Resumen
Fecha de inicio: 1 de marzo de 2002
Fecha en la que se inscribió al primer participante.OBJECTIVES: * Assess expression of emotion, as a function of patient presence, among spousal or other cohabiting caregivers (CG) of post-hematopoietic stem cell transplantation patients. * Assess desynchrony among subjective (self-report) and expressive indicators of emotion, as a function of patient presence, in these participants. * Correlate CG dispositional inhibition and desynchrony with physical and marital satisfaction in these participants. OUTLINE: Caregivers (CG) complete written questionnaires assessing demographics, positive and negative affect, dispositional inhibition, marital satisfaction, and physical health over 45 minutes to 1 hour on day 1. CG then engage in two oral emotional expression exercises (on the topic of caregiving and the transplant) over 2 hours on day 2. Patients are present for one oral emotional expression exercise. Participants are followed at 2 weeks and 6 months. PROJECTED ACCRUAL: A total of 60 patient/spouse couples will be accrued for this study within 18 months.
Protocolo
Esta sección proporciona detalles del plan del estudio, incluyendo cómo está diseñado y qué se está evaluando.Elegibilidad
Los investigadores buscan pacientes que cumplan ciertos criterios, conocidos como criterios de elegibilidad: estado general de salud o tratamientos previos.Cualquier sexo
Sexo biológico de los participantes elegibles para inscribirse.A partir de 21 años
Rango de edades de los participantes que pueden unirse al estudio.Voluntarios sanos no permitidos
Indica si personas sanas, sin la condición que se estudia, pueden participar.Condiciones
Patología
Criterios
DISEASE CHARACTERISTICS: * In a marriage OR long-term, committed, heterosexual or homosexual, cohabiting relationship in which one member is post-hematopoietic stem cell transplantation * Patients must meet the following criteria: * At least 1 year since prior first bone marrow, stem cell, or umbilical cord blood transplantation * Allogeneic or autologous * Diagnosis of malignancy, myelodysplasia, or non-malignancy * No indication of possible or confirmed relapse * Spouse/caregiver (CG) must meet the following criteria: * Serve as the primary CG to the patient * No prior or concurrent neurologic disorder PATIENT CHARACTERISTICS: Age * 21 and over Performance status * Not specified Life expectancy * Not specified Hematopoietic * Not specified Hepatic * Not specified Renal * Not specified Other * No concurrent major psychiatric disorder * English-speaking PRIOR CONCURRENT THERAPY: Biologic therapy * See Disease Characteristics Chemotherapy * Not specified Endocrine therapy * Not specified Radiotherapy * Not specified Surgery * Not specified
Centros del Estudio
Estos son los hospitales, clínicas o centros de investigación donde se lleva a cabo el estudio. Puedes encontrar la ubicación más cercana a ti y su estado de reclutamiento.Este estudio tiene una ubicación