Why Participate in Clinical Research?
November 20, 2024
SUMMARY
Clinical trials are at the key of medical progress, offering participants the unique opportunity to contribute to groundbreaking research while potentially accessing new treatments. Whether you're seeking innovative therapy options or simply want to support the advancement of medicine, understanding the reasons people participate in clinical trials can help you determine if it's the right choice for any future patients: you or a loved one.
By PatLynk

The Growing Interest in Clinical Research
More people than ever are considering participation in clinical research. According to a recent survey by CISCRP, individuals join for various reasons, from supporting scientific advancements to accessing promising new treatments. If you're curious about whether a clinical trial aligns with your goals, it's essential to explore the different purpose of a clinical trial, its benefits, its risks, and the different types of studies available.
Understanding Potential Risks and Potential Benefits
Your decision to participate in a clinical trial should match your personal health objectives, both for healthy volunteers or people with a certain disease. Clinical trials generally fall into two main categories:
Interventional Studies: Testing New Treatments
These treatment trials assess new approaches for treatment: could be new drugs, medical procedures, new combinations of existing treatments or medical devices. Clinical trials participants may receive experimental treatments under close medical supervision. If you’re exploring new therapy options for a condition with limited treatments, interventional trials could provide early access to cutting-edge care.
Potential Benefits:
- Potential access to new treatments before they are widely available
- Close monitoring by healthcare professionals and research team
- Contributing to the approval of future medical innovations
Potential Risks:
- Possible side effects from experimental treatments
- Commitment to study protocols, including frequent medical visits
- Some experimental drugs can be compared to existing treatments (standard of care or placebo) with a treatment group and a control group
Observational Studies: Gathering Data to Improve Medicine
In these observational studies, researchers or sponsors collect health data without introducing new treatments. Participants continue their regular care while providing valuable insights into research questions such as disease patterns, risk factors, and treatment effectiveness.
Potential Benefits:
- No experimental treatments, reducing potential medical risks
- Minimal disruptions to your routine
- Helping researchers refine medical practices and treatments
Potential Risks:
- May require sharing personal health data
- No direct treatment benefits, as the study focuses on observation
By understanding the differences between these trial types, you can make an informed decision that best suits your needs.
Why Do People Join Clinical Research Studies?
A recent survey highlighted six key motivations to play an active role in clinical studies:
1. Advancing Medical Science
Many participants find personal fulfillment in knowing their involvement contributes to medical breakthroughs that could improve lives worldwide. This is especially true in observational studies or for healthy volunteers, where data collection shapes future healthcare strategies.
2. Helping Others
Nearly 43% of participants join clinical trials to support others facing similar health conditions. Whether interventional or observational, every contribution plays a role in improving healthcare outcomes for future generations.
3. Access to New Treatments
For those with limited treatment options, interventional trials provide early access to innovative therapies that could offer hope when standard treatments fall short.
4. Financial Incentives
Some clinical trials offer compensation for time, travel, and participation efforts. While this isn’t a primary motivator for all, it can be a helpful benefit. Incentives differ depending on the country: for example, paid clinical trials happen often in the United States, less often in the European Union (Learn more about paid clinical trials).
5. Education & Health Awareness
Clinical trial participants often gain deeper insights into their condition, treatment options, and overall health, empowering them to make more informed healthcare decisions.
6. Influence of Information
Around 24% of individuals say they decided to participate in a trial based on what they read or heard. This highlights the importance of transparent and accurate communication about clinical trials.
Making the Decision to Join a Clinical Trial
If you’re considering participation, take these essential steps:
1. Ask Questions
Before enrolling, consult with the research team and your doctor. Consider asking:
- What is the purpose of the study?
- What are the potential risks and benefits?
- How does this compare to standard treatment options?
- What is the phase of the trial (phase 1 trial or phase iii trials do not have the same risk)?
- What is the time commitment, including visits and follow-ups?
- Will there be compensation or costs involved?
- How will my privacy and health data be protected?
2. Evaluate Your Goals
Define what you hope to gain—whether it’s access to innovative treatments, contributing to medical research, or learning more about your health.
3. Know Your Rights
Participation is entirely voluntary, and you can withdraw at any time if you feel the study no longer aligns with your needs.
Why Your Participation Matters
Every medical advancement, from life-saving vaccines to new cancer treatments, exists because of individuals who choose to participate in clinical research. Clinical trials are an important part and the drug development process. Your involvement plays a crucial role in shaping the future of medicine.
At PatLynk, we are dedicated to guiding you through the clinical trial process, helping you find studies that align with your needs and interests. If you’re ready to explore clinical research opportunities, let’s take the next step together toward a healthier future.