Completed

cardiohcsEvaluation of Cardiovascular Risk Profile in Adult Patients With Congenital Adrenal Hyperplasia Due to 21-hydroxylase Deficiency Diagnosed During Childhood

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What is being collected

Data Collection

Collected at a single point in time - Cross-sectional
No DNA Sample
Who is being recruted

Congenital Abnormalities+15

+ Urogenital Diseases

+ Adrenal Gland Diseases

Over 18 Years
See all eligibility criteria
How is the trial designed

Cohort

Tracking disease incidence in order to identify risk factors and understand disease progression over time.
Observational
Study Start: May 2011
See protocol details

Summary

Principal SponsorAssistance Publique - Hôpitaux de Paris
Last updated: June 17, 2016
Sourced from a government-validated database.Claim as a partner

Study start date: May 1, 2011

Actual date on which the first participant was enrolled.

Treatment with glucocorticoids and mineralocorticoids has changed congenital adrenal hyperplasia (CAH) from a fatal to a chronic lifelong disease. Long-term treatment, in particular the chronic (over-)treatment with glucocorticoids, may have an adverse effect on the cardiovascular risk profile in adult CAH patients. The objective of this study was to evaluate the cardiovascular risk profile of adult CAH patients. DESIGN: Case control study Primary objective : detection of cardiovascular damage in patients with classical or non classical CAH diagnosed in childhood. The patients will be compared with age- and gender- and tobacco status- matched control. Secondary objective Study of microvascular function Evaluation of cardiovascular risk factors Total cumulative (TCG) and total average (TAG) glucocorticoid doses will be calculated from pediatric and adult files and correlated to arterial macro- and microcirculatory dysfunction. Primary outcome Ultrasound evaluation of intima-media thickness at common carotids, carotid bulbs and left ventricular function Secondary outcome Peripheral and central blood pressure Skin capillary density and pulse-wave velocity Glucose and insulin during an oral glucose tolerance test Circulating cardiovascular risk markers (hsCRP, adiponectin, Interleukin-6) Lipid profile Anthropometry, fat and lean mass measured by dual-energy X-ray absorptiometry Total cumulative dose of glucocorticoid Number of subjects : 90 patients/90 controls Inclusion criteria of CAH patients Patients > 18 yrs with classical or non classical CAH diagnosed during childhood Absence of known cardiovascular disease Absence of combined oral contraceptives during the previous month Inclusion criteria of controls Age under 18 Absence of known cardiovascular disease Absence of combined oral contraceptives during the previous month Duration of the inclusion period: 3 years

Principal SponsorAssistance Publique - Hôpitaux de Paris
Last updated: June 17, 2016
Sourced from a government-validated database.Claim as a partner

Protocol

This section provides details of the study plan, including how the study is designed and what the study is measuring.
Design Details

170 patients to be enrolled

Total number of participants that the clinical trial aims to recruit.

Cohort

These studies follow a group of individuals with common characteristics (such as a condition or birth year) over a specific period to study health outcomes or exposures.


Eligibility

Researchers look for people who fit a certain description, called eligibility criteria: person's general health condition or prior treatments.
Conditions
Criteria

Any sex

Biological sex of participants that are eligible to enroll.

Over 18 Years

Range of ages for which participants are eligible to join.

Healthy volunteers allowed

If individuals who are healthy and do not have the condition being studied can participate.

Conditions

Pathology

Congenital AbnormalitiesUrogenital DiseasesAdrenal Gland DiseasesEndocrine System DiseasesFemale Urogenital Diseases and Pregnancy ComplicationsGonadal DisordersMetabolic DiseasesMetabolism, Inborn ErrorsCongenital, Hereditary, and Neonatal Diseases and AbnormalitiesNutritional and Metabolic DiseasesDisorders of Sex DevelopmentUrogenital AbnormalitiesGenetic Diseases, InbornSteroid Metabolism, Inborn ErrorsAdrenogenital SyndromeFemale Urogenital DiseasesMale Urogenital DiseasesAdrenal Hyperplasia, Congenital

Criteria

Inclusion criteria : patients Patients > 18 yrs with classical or non classical CAH diagnosed during childhood Absence of known cardiovascular disease Absence of combined oral contraceptives during the previous month Inclusion criteria : controls Age > 18 yrs Absence of known cardiovascular disease Absence of combined oral contraceptives during the previous month Exclusion criteria : Blood donation during the previous 3 months Cardiovascular disease Treatment by combined oral contraceptives Pregnancy

Study Plan

Find out more about all the medication administered in this study, their detailed description and what they involve.
Treatment Groups
Study Objectives

2 intervention groups are designated in this study

This study does not include a placebo group 

Treatment Groups

Study Objectives

Primary Objectives

Secondary Objectives

Study Centers

These are the hospitals, clinics, or research facilities where the trial is being conducted. You can find the location closest to you and its status.

This study has 1 location

Pitié Salpêtrière Hospital

Paris, FranceOpen Pitié Salpêtrière Hospital in Google Maps
CompletedOne Study Center